Organization: Barth Syndrome Foundation of Canada - Georgetown
Phone Numbers: 905-873-2391
Toll-Free: 1-888-732-9458
Email: info@barthsyndrome.ca
Website: www.barthsyndrome.ca
Address:
162 Guelph St, Suite 115
Georgetown, ON
L7G 5X7
Street
Address
:
Georgetown
Accessibility Notes: Mailing address
Hours:

Contact for information

Executives: Susan Hone - President
Service Description: On-going programs include: 
 
Science and Research
  • participation in helping to fund approved Barth syndrome specific research in Canada and worldwide 

Health Counselling
  • providing affected individuals and their families with information and emotional support to improve quality of life, advance treatments, and find a cure for Barth syndrome 

Health Information Activities
  • awareness program for the medical community and the general public providing information about Barth syndrome, diagnostic alternatives, and treatments to help patients get care unique to Barth syndrome



Fees: None
Application:

No application required

Eligibility / Target Population: Individuals and families affected by Barth Syndrome and those supporting the foundation's aims
Languages: English
Area Served: Algoma, Barrie & Area, Bolton Caledon, Bramalea, Brampton, Brant, Burlington, Cambridge–North Dumfries, Chatham – Kent, City of Thunder Bay, Cochrane, Collingwood & Area, District of Kenora, District of Rainy River, District of Thunder Bay, Dufferin, Durham North East, Durham West, East Mississauga, East York, Elgin, Etobicoke, Grey and Bruce, Guelph–Puslinch, Haldimand Norfolk, Haliburton County and City of Kawartha Lakes, Halton Hills, Hamilton, Huron and Perth, James and Hudson Bay Coast, Kingston, Kitchener–Waterloo–Wellesley–Wilmot–Woolwich, Lanark, Leeds & Grenville, London and Middlesex, Midland, Penetanguishene & Area, Milton, Muskoka, Niagara, Niagara North West, Nipissing–Temiskaming, North Etobicoke, Malton, West Woodbridge, North Lanark/North Grenville, North West Mississauga, North York, Northern, Northumberland County, Oakville, Orillia & Area, Ottawa, Oxford and Norfolk, Peterborough City and County, Prescott/Russell, Quinte, Renfrew County, Rural Frontenac, Lennox & Addington, Rural Hastings, Sarnia – Lambton, Scarborough, Scarborough North, Scarborough South, South Etobicoke, South Simcoe, South West Mississauga, Stormont/Dundas/Glengarry, Sudbury–Manitoulin–Parry Sound, Toronto, Wellington, Windsor – Essex, York - Toronto, York Region
See Also: Genetic Disorders
Last Updated: 11/27/2024
Service Profile Web Address: eng/displayService.aspx?id=191256

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