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Organization:
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EDS Foundation
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Toll-Free:
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1-833-452-3371 (1-833-ILC-EDS1)
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Fax:
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1-888-327-7853
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Address:
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700 Third Line, Suite 136
Oakville, ON
L6L 4B1
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Intersection:
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Third Line and Wyecroft Rd
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Location:
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Oakville (Queen Elizabeth)
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Accessibility:
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Wheelchair Accessible
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Executives:
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Sandy Smeenk - Director
S.Smeenk@EDSCanada.org
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Public Contacts:
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Hannah Raposo - Communications Coordinator
media@EDSCanada.org
Tammy Stadt - Education, Wellness, and Resource Director
T.Stadt@EDSCanada.org
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Service Description:
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Registered charitable foundation providing help to those living with Ehlers-Danlos Syndromes (EDS) and related conditions, including chronic pain
Services include:
- providing press kits which include quick links to basic information about the conditions, a layperson’s glossary, basic fact sheets and information about the EDS Canada Foundation
- virtual support groups * advanced registration for each session is required * registration fee of $10 * support groups do not intend to replace individual professional care
- wellness support sessions for those with EDS, Hypermobility Spectrum Disorder (HDS), and its related conditions including chronic pain or other heritable connective tissue disorders
- pain, advocacy and educational resources
- crisis lines and mental health resources, including Suicide Crisis Helpline: 9-8-8
- agency cannot provide medical or pharmaceutical advice and does not endorse any one method of treatment for people suffering from chronic pain
- fund research to find cures through student grants and knowledge dissemination partnerships
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Fees:
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None
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Application:
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Call, email or visit the website for more information
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Eligibility / Target Population:
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No restrictions
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Languages:
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English
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Area Served:
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Halton Region, Peel Region, and Greater Toronto Area
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Last Updated:
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11/28/2025
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Service Profile Web Address:
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eng/displayService.aspx?id=92718
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