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Organization: EDS Foundation  
Toll-Free: 1-833-452-3371 (1-833-ILC-EDS1)
Fax: 1-888-327-7853
Email: contactus@edscanada.org
Website: edscanada.org/
Address:
700 Third Line, Suite 136
Oakville, ON
L6L 4B1
Intersection: Third Line and Wyecroft Rd
Location: Oakville (Queen Elizabeth)
Accessibility: Wheelchair Accessible    Wheelchair Accessible
Executives: Sandy Smeenk - Director
S.Smeenk@EDSCanada.org
Public Contacts: Hannah Raposo - Communications Coordinator
media@EDSCanada.org
Tammy Stadt - Education, Wellness, and Resource Director
T.Stadt@EDSCanada.org
Service Description: Registered charitable foundation providing help to those living with Ehlers-Danlos Syndromes (EDS) and related conditions, including chronic pain

Services include:
  • providing press kits which include quick links to basic information about the conditions, a layperson’s glossary, basic fact sheets and information about the EDS Canada Foundation
  • virtual support groups * advanced registration for each session is required * registration fee of $10 * support groups do not intend to replace individual professional care
  • wellness support sessions for those with EDS, Hypermobility Spectrum Disorder (HDS), and its related conditions including chronic pain or other heritable connective tissue disorders 
  • pain, advocacy and educational resources
  • crisis lines and mental health resources, including Suicide Crisis Helpline: 9-8-8
  • agency cannot provide medical or pharmaceutical advice and does not endorse any one method of treatment for people suffering from chronic pain
  • fund research to find cures through student grants and knowledge dissemination partnerships

Fees: None
Application: Call, email or visit the website for more information
Eligibility / Target Population: No restrictions
Languages: English
Area Served:
Halton Region, Peel Region, and Greater Toronto Area  
See Also: Children and Youth with Disabilities
Diseases and Conditions Support Groups
Pain

This information was last completely updated on November 28, 2025

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© 2025, Ontario Health atHome

Updated November 28, 2025
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"About Us"
To help Canadians overcome the challenges of living with Ehlers-Danlos Syndromes and related conditions, including chronic pain through knowledge-sharing resources, awareness, education, wellness support and research to find cures